Friday, November 5, 2010
The Beginning of a Surprise - then called as a "Mystery Woman"
In the summer of 2009, I had ovarian cyst removed (benign) then after that, I went downhill - I had 2 things going on the same time - going through surgery that was not related to lymphoma. Anyway, later that fall, I began to have occasional night sweats, low grade fever - just warm - not with thermometer but generally feeling very fatigued and had severe joint/bone/muscle/nerve pain attacks all over my body, especially at nights so I had to take large dose of Ibuprophen and that did the trick. Then in November came the enlarged lymph nodes. My dr. gave me antibiotics and told me it was just a "virus". I went to different specialists: hemotologist, ENT, and rheumotologist with no real findings. Still I was not satisfied so I changed to a new doctor and in January, she advised me to take vitamin B12 injections, iron and other vitamins which helped a bit. The body pain went away and my energy came back but only til few months later, I had fatigue attacks again and my enlarged nodes appeared again plus those new ones in my groin. My doctor said in April that I am a "Mystery Woman!" because of those symptoms!! Finally in June, she ordered the lymph node biopsy to find that I have Hodgkins lymphoma on August 6th. What a shock - I felt my surgery of the cyst, those antibiotics, vitamin regimen delayed in finding out my diagnosis by one year. I wish all doctors, including 2 doctors I saw would be educated simply about those symptoms because 1 in 6 people have cancer ... why can't doctors know generally about this stuff? I am learning that I have to be more of an advocate for myself and perhaps use hospitals or clinics or practices that have good support updated systems.
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